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Background The novel coronavirus (SARS-CoV-2) has led to a global pandemic, resulting in a disease termed COVID-19, which commonly presents in adults as a typical infection of the upper respiratory tract. Although the disease is often acute, one in ten patients can continue to be affected for weeks or months, resulting in a state called...
Background: There is currently no standard definition of medical affairs, despite its increasing importance to the pharmaceutical industry. The evolution of medical affairs necessitated the development of a standardised definition to guide policy and practice to ensure that patients’ interests remain central amid shifts that have, in the past, created fertile ground for ethical violations....
We’re celebrating a birthday here at @medialis: the #jandhyalamethod is 2 years old today. Published online in 2020, it has been used to delivered 6 important pieces of original research in #medicalaffairs and #realworldevidence in #rarediseases and a broader #construct measurement. In delivering the first disease-specific #qol instrument for #longcovid, the #jandhyalamethod operationalised #neutraltheory to...
At Medialis Ltd our focus is rare diseases. Our third #RareDiseaseSpotlight in the 2022 series is Angelman syndrome, a rare neurodevelopmental disorder. It is characterised by severe learning difficulties, ataxia, a seizure disorder with a characteristic EEG, subtle dysmorphic facial features, and a happy, sociable disposition. With the care and support from patient organizations Angelman Syndrome Foundation, Foundation for Angelman Syndrome...